Rare Disease Awareness Month 2024. But what exactly is a rare disease, and how widespread are they? The theme for 2024 is 'share your colors', and encourages increased awareness.

We first met rykker when he was just a month old and diagnosed with a rare disease spinal muscular atrophy type 1. Rare disease day at nih aims to raise awareness about rare diseases, the people they affect, and nih collaborations that address scientific challenges and advance research for.